Tag: chronic illness

Better Box

Candice is a friend of mine that I met through Rare Diseases South Africa. She is such a brave woman, and is someone who is always looking for ways to make others happy. She reached out to me before lockdown about her idea for “Better Box”, and asked if she could include some of our Rare Bears in it. We discussed what she was planning to do, and I knew that this was really something special! Each box is put together with so much love and thought, and she is spreading kindness with every one sent out. Keep reading to learn more about this project, and see just how special it really is.


Your name: Candice Schutte

Business name: Better Box

Social media handles: Website, Instagram and Facebook

Some fun facts about you: I am a fun loving mom of 2 with a passion for anything creative and quirky. I have always been community driven working with Girl Guides Association SA, headed up CI for workplaces and was Miss Cansa 2000. I fundamentally believe in the value Kindness is Contagious and this is the mark I want to leave on the universe.

Tell me a little more about this business: Better Box was dreamt up in my hospital bed. Many times I lay in hospital having a real pity party for myself – the pinnacle being my 30th Birthday! I knew that people cared and were concerned for me but when you are chronically ill people assume that after a while you just ‘got this’. Actually though you don’t, because every time you end up back in hospital its a knock to your emotional and physical state. I just want Better Box to be the little glimmer of hope for people when they are at their low, this can be in any way , shape or form. Its a little Box of Happiness to let someone know that someone cares.

What inspired you to start it: I inspired myself to start. I am currently on medical disability due to my Rare Diseases and can no longer work in a traditional workplace. Most of the work for Better Box is co ordinated by me but my family are hugely involved due to my health. I lost my dad to Marfan’s Syndrome when I was 14 and my mom to Leukemia a few years back. While my mom went through chemo I stopped working to care for her and was at the hospital every day taking food and clothes to the others in the ward with her. I 100% know that is where my passion for this really started, I just had no idea the way my life and health would take me to Better Box.

Who are some of the brands that have come on board: The suppliers for Better Box have been carefully selected as I wanted to empower small businesses run by mommies, Rare Diseases patients as well as give back to a community in some way. I would not have Better box without the Rare Bear Project and they are an integral part of my boxes. Other brands include KwirkNation, Creative Junction, Mammamade, Knits and Knots, Wylie B Vinyl crafts, Gift Boss, Oh Soap Crazy, and Hope Soaps.

How can people order one: Please go to www.betterbox.co.za to order online and email hello@betterbox.co.za for any kind of customisation.

Why do you think this is such a great idea: So much love and care goes into preparing each box, the goodies inside are practical, fun and quirky. I dare you not to Smile!

Who do you think would enjoy one: Everyone loves to feel good and spoilt!

How did you decide on each item in the box: Our Signature Box the ‘Go Box’, is designed to include everything you would need for an emergency hospital stay – believe me I have forgotten more than one of these items even when I have prepared!

Whats in the box?
Everything you would need for a hospital visit !

  • Custom made drip friendly Better Box sleep shirt
  • Warm comfy socks
  • Bamboozles toothbrush and toothpaste
  • Mini soaps and sponge
  • Earphones to tune out and chill
  • A little something to snack on
  • Colouring in to keep the mind busy and relaxed

Other boxes: Snack Box, Bump Box for new mommies, Brave Box for little ones, Be happy Box, FU Cancer Box, Donate a Box and the Box Fund
We are also running a Pay it Forward campaign:
We challenge you to buy a box for someone you know or we donate to ,and nominate a friend to do the same, every 10th box will be up for grabs for the people that purchased to gift or keep for themselves! Pay it forward, kindness is contagious!!
Lets get a Better Box chain going!
Show off your nominations and acts of kindness and don’t forget to tag us! #payitforward #kindness #cancer

What has it been like living with a rare disease: The last 12 years have been exhausting and painful. I have had countless surgeries, 36 kidney stones, gone blind in my left eye and now chronic fatigue, pain and hands that do not co operate. I am however grateful that I finally have a diagnosis as well as the ability to speak up for those with rare Disease!

Quote you live by: It costs nothing to be kind.


I absolutely adore everything that Candice and Better Box stand for, and have loved seeing her dream come alive. She has even sent a box to a friend of mine who is currently battling cancer, and it made my friend feel so special as well as reminding her just how much she means to so many of us.

If you would like to get involved in this, or perhaps even purchase one for a friend, please reach out to Candice via social media or email. Speaking from experience, I can vouch for just how much it means to receive a gift while in hospital or feeling rotten – because no matter how “normal” it is to be admitted, it honestly never gets easier.


Hospital Spoils

I have been admitted into hospital over 100 times – easily.  The first year of my diagnosis saw me spending more time in hospital than I did at home.  I have had over 20 operations (I can’t remember the exact number & to be honest can’t even remember all the operations – I try to block these from my memory once they are over).  This means a LOT of time spent lying in a hospital bed.  It means sore muscles, hairy legs, uncomfortable beds, greasy hair, being run-down & generally just feeling rotten.

It means long days of doing nothing, & not wanting to actually watch one more TV show that is on repeat.  I often beg my husband to just rub my feet as I crave human touch & my feet ACHE from not being used.  So when I saw a new business here in Joburg North being advertised, I was super excited.

Hospital Spoils is a relatively new business that will come to you in hospital, or whilst you are recovering at home.  In fact, they even came to my office in Broadacres to pamper me there.

They reached out to me to offer me a treatment of my choice (of course I went for a shoulder, neck & head massage!) & I knew that my fellow rare warrior friends & hospital frequent-ers would be super excited about this idea.


Your name:  Dr Claire Mitchell – Specialist General Surgeon and CEO & Sarah Saffy – Managing Director

Business name:  Hospital Spoils

Social media handles:  WebsiteFacebookInstagram

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Tell me a bit more about your business:  Hospital Spoils is a specialised mobile spa with medically trained therapists that offer manicures, pedicures, massages and hair wash and blow – dry’s right at your bedside. Started by a Specialist Surgeon, servicing hospitals, clinics, retirement and private homes in the north of JHB and surrounding areas. Perfect for people in hospital or at home – new mom’s, post op, elderly, unwell and those who are house bound.

Where did the idea for this come from:

 

What area do you work in:  Hospitals, retirement villages, old age homes, rehab facilities and private homes in Joburg North.

How can people book you to come to them:  Call or WhatsApp 083 778 4741

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Are your therapists trained beauty therapists:  Yes and hair stylists!

See full pricelist here:  HS Digital Leaflet Insert 2

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I was so impressed with the level of hygiene & care that was taken throughout my treatment.  And you can tell that the therapists really care about what they are doing – it is so much more than a job for them.  They really want to help you feel better about yourself, & take away some of the stress that you have been experiencing.

My favourite part was that I was constantly kept informed via Whatsapp on what was on offer, who my therapist would be, confirmation of my appointment, an invoice, & then I was sent a message following my treatment to rate how it went & if they can improve in any way.  Customer service is of the utmost importance – especially in this area & when you are dealing with people who are either sick or recovering from some downtime.

I can absolutely say, without any hesitation, that I recommend Hospital Spoils for anyone & everyone.  And I know who my first call during my next hospital admission will be to!

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